ALLISON NAMED AS CHAPTER DIRECTOR FOR THE FSH SOCIETY
I’m excited to announce that the FSH Society has announced a Utah Chapter and named Allison, my wife, as the chapter director. She’ll be using her medical experience as a nurse and her passion for helping those with FSH Muscular Dystrophy to create a local support network to impact thousands of lives.
Before I was was officially diagnosed, I didn’t know anything about FSH Muscular Dystrophy. I just knew I was in pain. The symptoms became a guessing game as the stress and pain continued to get worse. Along with finding a cure, it’s this lack of awareness that the FSH Society is tackling head on. The FSH Society is giving thousands of people, just like me, the awareness, support and hope they need to start living again.
The Utah Chapter held its inaugural event here in Salt Lake City on March 16th, 2019. It’s a great opportunity to make a difference in someone’s life. To become a member (no cost) or learn more, click here.
- Curtis Calder
So proud of you Allison. Both you and Curt are true example of courage, love abd compassion.
We are here in Utah delayed a bit since my fiancé fell and broke his femur.
Our trip to the UN CSW In NY was csmcelled because of the Cornovirus but hoping to go back in May and June for the World Health Assembly and the Human Rights Council in Geneva! We will be married there.
Hope to be able to continue to be in touch with you & Curt and your wonderful family!
Afton & David Reed (fiancée)